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Speak to your local carer centre for support available
If you provide assistance to or care for another person then as a carer, there are certain things you should do or you should know.
Here are our top tips for all carers, existing and new.
Complete a Carers Assessment (for you) and a Needs Assessment for the one you care for (If you haven’t done so already). It may help to identify the support you and your family require. This can be completed via your Local Authority or your local carers centre.
Find out more about your local carers centre. They have a wide range of support, advice, classes and activities to help you as a carer.
Every year millions of pounds of carers' benefits go unclaimed in the UK. Use a benefits checker such as Turn2Us to see what benefits support you may be entitled to. There are carer specific benefits available such as as Carers Allowance or Carers Credit.
Look into some of the great carer technology which can make caring easier
Juggling work and care can be tricky, as a carer you have employment rights and more employers are recognising the importance of supporting the people in their workforce with caring responsibilities.
Register yourself as a carer with your GP. You will be entitled to health checks as well as other services.
Carers' Trust
The Carers' Trust is the largest provider of comprehensive carers support services in the UK.
Age UK
We aim to provide life-enhancing services and vital support to people in later life. We and our local partners deliver a range of services across the UK.Our local Age UKs run a variety of different services. Not all services take place in every area, but all local Age UKs will be able to help you find what you're looking for.
Bridgit
Bridgit Care understand that being an unpaid carer is one of the most important jobs out there. But it can sometimes feel lonely and like you're unsupported. Which is why we're always here to listen and help. We believe technology should be designed with and for carers and the ones they support.Email: contact@bridgit.care
Carers UK
Carers UK give expert advice, information and support to carers in order to make their life better.Carers UK are available to make sure that no matter how complicated your query or your experience, you don't have to care alone.
They have an expert telephone advice and support service for if you want to talk about caring. And if you're looking for answers, they have online information and support.
Carers UK continually campaign for carers rights, alongside having online support groups and volunteering opportunities.
Veterans Gateway
Veterans’ Gateway – information, advice and support for veterans and their families Here for you 24/7, we are the first point of contact for veterans and their loved ones. We can directly refer you to our verified, expert partners including Combat Stress, SSAFA, Poppy Scotland and more.
Carers UK Animated Video Guides
Carers UK animation series covers a wide variety of topics to help you understand what support and benefits are available to help you look after someone as well as yourself.Click below to play animation
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Carers' Trust
The Carers' Trust is the largest provider of comprehensive carers support services in the UK.Carers UK
Carers UK give expert advice, information and support to carers in order to make their life better.Carers UK are available to make sure that no matter how complicated your query or your experience, you don't have to care alone.
They have an expert telephone advice and support service for if you want to talk about caring. And if you're looking for answers, they have online information and support.
Carers UK continually campaign for carers rights, alongside having online support groups and volunteering opportunities.
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Samaritans
Whatever you're going through, a Samaritan will face it with you. We're here 24 hours a day, 365 days a year.If you are having a difficult time or are worried about someone else we can help you so please feel free to get in touch.
Alzheimers Society
Alzheimer's Society is the UK's leading dementia charity who support people living with dementia.Dementia is the UK's biggest killer. Someone develops it every three minutes and there's currently no cure. Alzheimer's Society are campaigning for change and funding research to find a cure.
They provide support, information and advice to anyone who may need it.
Dementia UK
Provides support, information and advice about living with dementia. It offers a helpline is for anyone with a question or concern about dementia.
Mind
When you're living with a mental health problem, having access to the right information is vital.Alternatively you may not be the person living with the mental health problem but wish to support someone who is.
Mind can help with this being a charity that supports and works hard to improve conditions for mental health in the UK.
We believe no one should have to face a mental health problem alone. We'll listen, give you support and advice, and fight your corner.
They offer a number of services such as advice and guidance, you can find by clicking the visit button below.
Next Steps
This website helps you to find the right support while waiting a memory assessment appointment and diagnosis.
Together In Dementia Everyday (TIDE)
This is a UK wide involvement network of carers, former carers and health and care professionals who are working together to build a better future for carers of people living with dementia.You have 4 notifications
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Let's have a quick chat to understand your current situation and your aspirations for returning to work. We'll create a concise plan that includes:
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Balancing Work and Care Responsibilities?
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In our short conversation, we'll discuss your need for a break from caregiving. We'll then formulate a plan that includes:
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Frontotemporal dementia is an uncommon type of dementia that causes problems with behaviour and language.
Dementia is the name for problems with mental abilities caused by gradual changes and damage in the brain.
Frontotemporal dementia affects the front and sides of the brain (the frontal and temporal lobes).
Dementia mostly affects people over 65, but frontotemporal dementia tends to start at a younger age. Most cases are diagnosed in people aged 45-65, although it can also affect younger or older people.
Like other types of dementia, frontotemporal dementia tends to develop slowly and get gradually worse over several years.
Symptoms of frontotemporal dementia
Signs of frontotemporal dementia can include:
- personality and behaviour changes – acting inappropriately or impulsively, appearing selfish or unsympathetic, neglecting personal hygiene, overeating, or loss of motivation
- language problems – speaking slowly, struggling to make the right sounds when saying a word, getting words in the wrong order, or using words incorrectly
- problems with mental abilities – getting distracted easily, struggling with planning and organisation
- memory problems – these only tend to occur later on, unlike more common forms of dementia, such as Alzheimer's disease
There may also be physical problems, such as slow or stiff movements, loss of bladder or bowel control (usually not until later on), muscle weakness or difficulty swallowing.
These problems can make daily activities increasingly difficult, and the person may eventually be unable to look after themselves.
Read more about the symptoms of frontotemporal dementia.
Getting medical advice
See a GP if you think you have early symptoms of dementia. If you're worried about someone else, encourage them to make an appointment with a GP and perhaps suggest you go with them.
The GP can do some simple checks to try to find the cause of your symptoms, and they can refer you to a memory clinic or another specialist for further tests if needed.
Read more about getting a dementia diagnosis.
Tests for frontotemporal dementia
There's no single test for frontotemporal dementia.
The following may be needed to make a diagnosis:
- an assessment of symptoms – it's normally helpful to have somebody who knows the person well to give an account of their symptoms, especially as someone with frontotemporal dementia may not be aware of changes in their behaviour
- an assessment of mental abilities – this will usually involve a number of tasks and questions
- blood tests – to rule out conditions with similar symptoms
- brain scans – such as an MRI scan, a CT scan or a PET scan; these can detect signs of dementia and help identify which parts of the brain are most affected, or help rule out other problems with the brain
- lumbar puncture – to test the spinal fluid (fluid that surrounds and supports the brain and spine); this may be useful to rule out Alzheimer's disease as the cause of symptoms
Read more about the tests used to diagnose dementia.
Treatments for frontotemporal dementia
There's currently no cure for frontotemporal dementia or any treatment that will slow it down.
But there are treatments that can help control some of the symptoms, possibly for several years.
Treatments include:
- medicines – to control some of the behavioural problems
- therapies – such as physiotherapy, occupational therapy, and speech and language therapy for problems with movement, everyday tasks and communication
- dementia activities – such as memory cafes, which are drop-in sessions for people with memory problems and their carers to get support and advice
- support groups – who can offer tips on managing symptoms from dementia experts and people living with frontotemporal dementia, and their families
Read more about how frontotemporal dementia is treated.
Outlook for frontotemporal dementia
How quickly frontotemporal dementia gets worse varies from person to person and is very difficult to predict.
People with the condition can become socially isolated as the illness progresses. They may not want to spend time in the company of others, or may behave in rude or insulting ways.
Home-based help will usually be needed at some stage, and some people will eventually need care in a nursing home.
The average survival time after symptoms start is around 8 to 10 years. But this is highly variable and some people live much longer than this.
If you or a loved one has been diagnosed with dementia, remember you're not alone. The NHS and social services, as well as voluntary organisations and specialist support groups, can provide advice and support for you and your family.
Causes of frontotemporal dementia
Frontotemporal dementia is caused by clumps of abnormal protein forming inside brain cells. These are thought to damage the cells and stop them working properly.
The proteins mainly build up in the frontal and temporal lobes of the brain at the front and sides. These are important for controlling language, behaviour, and the ability to plan and organise.
It's not fully understood why this happens, but there's often a genetic link. People who get frontotemporal dementia may have relatives who were also affected by the condition.
If you have a family history of frontotemporal dementia, you may want to consider talking to your doctor about being referred to a geneticist and possibly having a genetic test to see if you're at risk.
There's a lot of research being done to try to improve understanding of the causes of frontotemporal dementia so treatments can be discovered.
If you're interested in helping with research, you can speak to a doctor or register your interest on the Join Dementia Research website.
Other names for frontotemporal dementia
Doctors sometimes use different names to describe frontotemporal dementia. These include:
- FTD
- Pick's disease
- frontal dementia
- frontotemporal lobar degeneration
- behavioural variant frontotemporal dementia
- primary progressive aphasia
- semantic dementia
- progressive non-fluent aphasia
More information
Living with dementia
- Living well with dementia
- Staying independent with dementia
- Dementia activities
- Looking after someone with dementia
- Dementia and your relationships
- Communicating with someone with dementia
- Coping with dementia behaviour changes
Care and support
- Sources of help and support for people with dementia
- Dementia UK: nurse helpline
- Dementia and care homes
- Dementia, social services and the NHS
- Dementia and managing money
- Managing legal affairs for someone with dementia
- Dementia and end of life planning
- Rare Dementia Support
How you can help
Vascular dementia is a common type of dementia caused by reduced blood flow to the brain. It's estimated to affect around 180,000 people in the UK.
Dementia is the name for problems with mental abilities caused by gradual changes and damage in the brain. It's rare in people under 65.
Vascular dementia tends to get worse over time, although it's sometimes possible to slow it down.
Symptoms of vascular dementia
Vascular dementia can start suddenly or begin slowly over time.
Symptoms include:
- slowness of thought
- difficulty with planning and understanding
- problems with concentration
- changes to your mood, personality or behaviour
- feeling disoriented and confused
- difficulty walking and keeping balance
- symptoms of Alzheimer's disease, such as problems with memory and language (many people with vascular dementia also have Alzheimer's disease)
These problems can make daily activities increasingly difficult and someone with the condition may eventually be unable to look after themselves.
Getting medical advice
See a GP if you think you have early symptoms of dementia, especially if you're over 65 years of age.
If it's found at an early stage, treatment may be able to stop vascular dementia getting worse, or at least slow it down.
If you're worried about someone else, encourage them to make an appointment with a GP and perhaps suggest that you go with them.
Your GP can do some simple checks to try to find the cause of your symptoms. They can refer you to a memory clinic or another specialist for further tests if needed.
Find out more about how to get a dementia diagnosis.
Tests for vascular dementia
There's no single test for vascular dementia.
The tests that are needed to make a diagnosis include:
- an assessment of symptoms – for example, whether these are typical symptoms of vascular dementia
- a full medical history, including asking about a history of conditions related to vascular dementia, such as strokes or high blood pressure
- an assessment of mental abilities – this will usually involve several tasks and questions
- a brain scan, such as an MRI scan or CT scan, to look for any changes that have happened in your brain
Find out more about the tests used to diagnose dementia.
Treatments for vascular dementia
There's currently no cure for vascular dementia and there's no way to reverse any loss of brain cells that happened before the condition was diagnosed.
But treatment can sometimes help slow down vascular dementia.
Treatment aims to tackle the underlying cause, which may reduce the speed at which brain cells are lost.
This will often involve:
- eating a healthy, balanced diet
- losing weight if you're overweight
- stopping smoking
- getting fit
- cutting down on alcohol
- taking medicines, such as those used to treat high blood pressure, lower cholesterol or prevent blood clots
Other treatments, including physiotherapy, occupational therapy, dementia activities (such as memory cafes) and psychological therapies, can help reduce the impact of any existing problems.
Outlook for vascular dementia
Vascular dementia will usually get worse over time. This can happen in sudden steps, with periods in between where the symptoms do not change much, but it's difficult to predict when this will happen.
Home-based help will usually be needed, and some people will eventually need care in a nursing home.
Although treatment can help, vascular dementia can significantly shorten life expectancy.
But this is highly variable, and many people live for several years with the condition, or die from some other cause.
If you or a loved one has been diagnosed with dementia, remember that you're not alone. The NHS and social services, as well as voluntary organisations, can provide advice and support for you and your family.
Causes of vascular dementia
Vascular dementia is caused by reduced blood flow to the brain, which damages and eventually kills brain cells.
This can happen as a result of:
- narrowing and blockage of the small blood vessels inside the brain
- a single stroke, where the blood supply to part of the brain is suddenly cut off
- lots of "mini strokes" (also called transient ischaemic attacks, or TIAs) that cause tiny but widespread damage to the brain
In many cases, these problems are linked to underlying conditions, such as high blood pressure and diabetes, and lifestyle factors, such as smoking and being overweight.
Tackling these might reduce your risk of vascular dementia in later life, although it's not yet clear exactly how much your risk of dementia can be reduced.
More information
Living with dementia
- Living well with dementia
- Staying independent with dementia
- Dementia activities
- Looking after someone with dementia
- Dementia and your relationships
- Communicating with someone with dementia
- Coping with dementia behaviour changes
Care and support
- Sources of help and support
- Dementia UK: nurse helpline
- Dementia and care homes
- Dementia, social services and the NHS
- Dementia and managing money
- Managing legal affairs for someone with dementia
- End of life planning
How you can help
Social care and support guide
If you:
- need help with day-to-day living because of illness or disability
- care for someone regularly because they're ill, elderly or disabled, including family members
Our guide to care and support explains your options and where you can get support.
Dementia with Lewy bodies (DLB), also known as Lewy body dementia, is one of the most common types of dementia.
Dementia is the name for problems with mental abilities caused by gradual changes and damage in the brain. It's rare in people under 65.
It tends to develop slowly and get gradually worse over several years.
Symptoms of dementia with Lewy bodies
People with dementia with Lewy bodies may have:
- hallucinations and hearing voices – seeing, hearing or smelling things that are not there
- problems with understanding, thinking, memory and judgement – this is similar to Alzheimer's disease, although memory may be less affected in people with dementia with Lewy bodies
- confusion or sleepiness – this can change over minutes or hours
- slow movement, stiff limbs and tremors (uncontrollable shaking)
- disturbed sleep, often with violent movements and shouting out
- fainting spells, unsteadiness and falls
- depression and anxiety
These problems can make daily activities increasingly difficult and someone with the condition may eventually be unable to look after themselves.
Getting medical advice
See a GP if you think you have early symptoms of dementia, especially if you're over 65 years of age.
If you're worried about someone else, encourage them to make an appointment with a GP and perhaps suggest that you go with them.
The GP can do some simple checks to try to find the cause of your symptoms and they can refer you to a memory clinic or another specialist for further tests if needed.
Tests for dementia with Lewy bodies
There's no single test for dementia with Lewy bodies.
The following may be needed to make a diagnosis:
- an assessment of symptoms – for example, whether there are typical symptoms of dementia with Lewy bodies
- an assessment of mental abilities – this will usually involve a number of tasks and questions
- blood tests to rule out conditions with similar symptoms
- brain scans, such as an MRI scan, CT scan or a SPECT scan – these can detect signs of dementia or other problems with the brain
Treatments for dementia with Lewy bodies
There's currently no cure for dementia with Lewy bodies or any treatment that will slow it down.
But there are treatments that can help control some of the symptoms, possibly for several years.
Treatments include:
- medicines to reduce hallucinations, confusion, drowsiness, movement problems and disturbed sleep
- therapies such as physiotherapy, occupational therapy and speech and language therapy for problems with movement, everyday tasks and communication
- psychological therapies, such as cognitive stimulation (activities and exercises designed to improve memory, problem solving skills and language ability)
- activities for dementia, such as memory cafes (drop-in sessions for people with memory problems and their carers to get support and advice)
Outlook for dementia with Lewy bodies
How quickly dementia with Lewy bodies gets worse varies from person to person.
Home-based help will usually be needed, and some people will eventually need care in a care home.
The average survival time after diagnosis is around 5 to 7 years. But this is highly variable and some people live much longer than this.
If you or a loved one has been diagnosed with dementia, remember that you're not alone. The NHS and social services, as well as voluntary organisations, can provide advice and support for you and your family.
Causes of dementia with Lewy bodies
Dementia with Lewy bodies is caused by clumps of protein forming inside brain cells. These abnormal deposits are called Lewy bodies.
These deposits are also found in people with Parkinson's disease, and they build up in areas of the brain responsible for functions such as thinking, visual perception and muscle movement.
It's not clear why the deposits develop and how exactly they damage the brain. It's thought that part of the problem is the proteins affecting the brain's normal functions by interfering with signals sent between brain cells.
Dementia with Lewy bodies usually occurs in people with no family history of the condition, although there have been very rare cases that seem to run in families.
More information
Living with dementia
- Activities for dementia
- Living well with dementia
- Staying independent with dementia
- Looking after someone with dementia
- Dementia and relationships
- Communicating with someone with dementia
- Coping with dementia behaviour changes
Care and support
- Help and support
- Dementia and care homes
- Dementia, social services and the NHS
- Dementia and managing money
- Managing legal affairs for someone with dementia
- End of life planning
How you can help
Alzheimer's disease is the most common cause of dementia in the UK.
Dementia is the name for a group of symptoms associated with an ongoing decline of brain functioning. It can affect memory, thinking skills and other mental abilities.
The exact cause of Alzheimer's disease is not yet fully understood, although a number of things are thought to increase your risk of developing the condition.
These include:
- increasing age
- a family history of the condition
- untreated depression, although depression can also be one of the symptoms of Alzheimer's disease
- lifestyle factors and conditions associated with cardiovascular disease
Read more about the causes of Alzheimer's disease.
Signs and symptoms of Alzheimer's disease
Alzheimer's disease is a progressive condition, which means the symptoms develop gradually over many years and eventually become more severe. It affects multiple brain functions.
The first sign of Alzheimer's disease is usually minor memory problems.
For example, this could be forgetting about recent conversations or events, and forgetting the names of places and objects.
As the condition develops, memory problems become more severe and further symptoms can develop, such as:
- confusion, disorientation and getting lost in familiar places
- difficulty planning or making decisions
- problems with speech and language
- problems moving around without assistance or performing self-care tasks
- personality changes, such as becoming aggressive, demanding and suspicious of others
- hallucinations (seeing or hearing things that are not there) and delusions (believing things that are untrue)
- low mood or anxiety
Read more about the symptoms of Alzheimer's disease.
Who is affected?
Alzheimer's disease is most common in people over the age of 65.
The risk of Alzheimer's disease and other types of dementia increases with age, affecting an estimated 1 in 14 people over the age of 65 and 1 in every 6 people over the age of 80.
But around 1 in every 20 people with Alzheimer's disease are under the age of 65. This is called early- or young-onset Alzheimer's disease.
Getting a diagnosis
As the symptoms of Alzheimer's disease progress slowly, it can be difficult to recognise that there's a problem. Many people feel that memory problems are simply a part of getting older.
Also, the disease process itself may (but not always) prevent people recognising changes in their memory. But Alzheimer's disease is not a "normal" part of the ageing process.
An accurate and timely diagnosis of Alzheimer's disease can give you the best chance to prepare and plan for the future, as well as receive any treatment or support that may help.
If you're worried about your memory or think you may have dementia, it's a good idea to see a GP.
If possible, someone who knows you well should be with you as they can help describe any changes or problems they have noticed.
If you're worried about someone else, encourage them to make an appointment and perhaps suggest that you go along with them.
There's no single test that can be used to diagnose Alzheimer's disease. And it's important to remember that memory problems do not necessarily mean you have Alzheimer's disease.
A GP will ask questions about any problems you're experiencing and may do some tests to rule out other conditions.
If Alzheimer's disease is suspected, you may be referred to a specialist service to:
- assess your symptoms in more detail
- organise further testing, such as brain scans if necessary
- create a treatment and care plan
Read more about diagnosing Alzheimer's disease.
How Alzheimer's disease is treated
There's currently no cure for Alzheimer's disease, but medicines are available that can help relieve some of the symptoms.
Various other types of support are also available to help people with Alzheimer's live as independently as possible, such as making changes to your home environment so it's easier to move around and remember daily tasks.
Psychological treatments such as cognitive stimulation therapy may also be offered to help support your memory, problem solving skills and language ability.
Read more about treating Alzheimer's disease.
Outlook
People with Alzheimer's disease can live for several years after they start to develop symptoms. But this can vary considerably from person to person.
Alzheimer's disease is a life-limiting illness, although many people diagnosed with the condition will die from another cause.
As Alzheimer's disease is a progressive neurological condition, it can cause problems with swallowing.
This can lead to aspiration (food being inhaled into the lungs), which can cause frequent chest infections.
It's also common for people with Alzheimer's disease to eventually have difficulty eating and have a reduced appetite.
There's increasing awareness that people with Alzheimer's disease need palliative care.
This includes support for families, as well as the person with Alzheimer's.
Can Alzheimer's disease be prevented?
As the exact cause of Alzheimer's disease is not clear, there's no known way to prevent the condition.
But there are things you can do that may reduce your risk or delay the onset of dementia, such as:
- stopping smoking and cutting down on alcohol
- eating a healthy, balanced diet and maintaining a healthy weight
- staying physically fit and mentally active
These measures have other health benefits, such as lowering your risk of cardiovascular disease and improving your overall mental health.
Read more about preventing Alzheimer's disease.
Dementia research
There are dozens of dementia research projects going on around the world, many of which are based in the UK.
If you have a diagnosis of dementia or are worried about memory problems, you can help scientists better understand the disease by taking part in research.
If you're a carer for someone with dementia, you can also take part in research.
You can sign up to take part in trials on the NHS Join Dementia Research website.
More information
Dementia can affect all aspects of a person's life, as well as their family's.
If you have been diagnosed with dementia, or you're caring for someone with the condition, remember that advice and support is available to help you live well.
Read more about:
Social care and support guide
If you:
- need help with day-to-day living because of illness or disability
- care for someone regularly because they're ill, elderly or disabled - including family members
Our guide to care and support explains your options and where you can get support.
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